Ileostomy Basics: Care, Diet, and Daily Living

What Is an Ileostomy?

An ileostomy is a surgery that helps your body get rid of poop in a new way.

During surgery, the doctor brings the end of your small intestine out through your belly. This opening is called a stoma. Poop now comes out through the stoma instead of going through your bottom.

You wear a pouch over the stoma to collect the poop.

  • The stoma is usually on the right side of your belly
  • The poop is usually soft or watery
  • You may need to empty your pouch 4 to 6 times a day
  • Ileostomy poop can irritate skin, so good care is very important

What Is Normal?

Your Stoma

  • Should look red, shiny, and wet, like the inside of your mouth
  • It does not hurt to touch
  • It may bleed a little if rubbed — this is normal
  • Go to the emergency room if bleeding does not stop or comes from deep inside the stoma

Skin Around the Stoma

  • Should look like the rest of your belly
  • Keep poop off your skin to prevent soreness
  • Measure your stoma often (especially in the first 8 weeks) so your pouch fits well
  • Shaving hair around the stoma helps the pouch stick better
  • Call your specialized nurse if the skin becomes red, itchy, sore, or painful

About the Pouching System

Your pouching system has two main parts:

1. The Skin Barrier

  • Sticky part that sticks to your skin
  • Fits closely around the stoma
  • Types:
    • Moldable
    • Cut-to-fit
    • Pre-cut
  • Leave no more than 3 mm of space around the stoma
  • Convex barriers push gently around the stoma to help prevent leaks (used for flat or tricky stomas)

2. The Pouch

  • Can be clear or tan
  • Is odor-proof
  • Can have a filter to let gas out
  • Types:
    • Drainable (empty and reuse)
    • Closed-end (throw away after use)

👉 Empty the pouch when it is ⅓ to ½ full

👉 A pouch that gets too full can leak or pull on your skin

Basic Stoma Care

  • Clean skin with warm water only
  • Do NOT use oils, creams, wipes, or lotions
  • Gently pat dry
  • Some redness after removing the barrier is normal
  • Do not “patch” leaks with tape — change the pouch
  • Call your nurse if burning, itching, or leaking continues
  • Change your pouch system every 5–7 days

Food and Drink

Eating Tips

  • Eat small meals every 3–4 hours
  • Do not skip meals
  • Chew food very well
  • Try new foods slowly

Drinking Tips

  • Drink 6–8 glasses of fluid daily
  • Sip instead of drinking large amounts
  • Wait 30–45 minutes after eating before drinking

Dehydration (Not Enough Fluids)

Signs:

  • Dry mouth
  • Dark urine
  • Peeing less
  • Feeling dizzy or very thirsty


👉 Call your healthcare provider if this happens

Food Blockage (Emergency)

Signs:

  • No poop coming out
  • Bad-smelling watery stool
  • Stomach pain or cramps
  • Swollen belly or stoma
  • Nausea or vomiting

👉 Stop eating

👉 Keep drinking if not vomiting

👉 Go to emergency or call your healthcare provider

Diarrhea

Diarrhea can happen from:

  • Certain foods
  • Illness
  • Antibiotics or medicines

Foods That Thicken Poop

  • Applesauce
  • Bananas
  • Yogurt
  • Potatoes
  • Marshmallows

Foods That Loosen Poop

  • Alcohol
  • Caffeine
  • Prunes
  • Spicy foods
  • Some fruits and vegetables

Gas and Odor

  • Pouches block odor when sealed well
  • Gas is normal
  • Filters help reduce ballooning

Foods That Cause Gas

  • Beans
  • Cabbage
  • Broccoli
  • Soda
  • Beer
  • Dairy

Foods That Help Reduce Odor

  • Yogurt
  • Cranberry juice
  • Parsley
  • Tomato juice

Activities and Bathing

  • You can shower, bathe, or swim with your pouch on or off
  • Water will not harm your stoma
  • Empty pouch before activities
  • Change pouch after hot tubs or heavy sweating
  • Do not wear a wet pouch for long periods

Intimacy

  • You can still have close relationships
  • Empty pouch before intimacy
  • Wear pouch covers or special underwear if helpful
  • Try different positions if uncomfortable
  • Never put anything inside the stoma

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